I am so sorry for the neglect that I have shown on this blog lately. It has been survival mode in my household the past few months. The Lord has blessed us with a wonderful surprise...we are expecting our forth child. Also, Ross has just finished his 3 1/2 months of formula only and is preparing for his scope bright and early in the morning. He has to arrive at 6:45am and the scope should be between 7 and 7:30 in the mourning. I would like to take a moment to say what an exteremly strong man I am married to. I have not one time heard him complain about drinking the formula. Now he does have a wish list of the foods he would like to have, but never a complaint. I am so proud of him! I have to say that traveling to Cincinnati is long and expensive, but the best decision we have ever made. The Lord have been faithful to provide the way thus far and we rely on Him to continue to do so for as long as is needed. Ross is feeling better than he has ever felt and has lost 57 pounds since the beginning of this journey. Now before you gasp at that weigt loss, he could stand to loose a few pounds (said with love ;)). He looks great and appears to be healthier than he has ever been!
Abigail will have her scope on Friday at 12:30 pm. I am proud to announce that after 2 years, Abigail has tested out of all of her therapies!!! This was an exciting time, yet a little sad to say good-bye to all of her therapists. Thank you, Mrs. Alissa, Mrs. Heidi, and Mr. Daryl for all of you hard work. It has paid off! And a special thanks to Mrs. Alissa (P.T.). We will miss you dearly. Abigail has been seeing her since she was 6 months old, but oh what progress she has made!
Please be in prayer that both Ross and Abigail will have clean scopes this time so that they may begin food trials. Please ask the Lord to bless each of them for all of their hard work and sacrifices made during this time of formula only. We know that the Lord is the Great Physican and He can do ALL things.
Visual Insight To Life With An EGID
You Are Not Alone!
We started this blog as a support to those families in Arkansas and around the country who are faced with raising a child with a life-altering eosinophilic disorder. It has been estimated that one out of 3,000 people have been diagnosed with an eosinophilic disorder. Children suffering from eosinophilic disorders have a myriad of problems. Some of which include: vomiting, diarrhea, feeding refusal, malnutrition, difficulty swallowing, and failure to thrive, just to name a few.
Could you imagine a life without food? For these children, that is a very real possibility. Many of them are on a very restrictive diet of special elemental formula. Those fortunate enough to still be eating foods are very limited as to what they can eat, and still have to drink an elemental formula to maintain a nutritionally complete diet. Not only do these kids have a restrictive diet, but many of them have feeding tubes and endure several surgeries and procedures. These children show us parents incredible strength and endurance! It is our hope that other families dealing with this disease realize they are not alone, and that more people will become aware of this disease. Hopefully this blog will be a support to those living with eosinophilic disorders.
NOTE: House Resolution 296 passed in 2007 declaring the third week of May, National Eosinophil Awareness Week.
Could you imagine a life without food? For these children, that is a very real possibility. Many of them are on a very restrictive diet of special elemental formula. Those fortunate enough to still be eating foods are very limited as to what they can eat, and still have to drink an elemental formula to maintain a nutritionally complete diet. Not only do these kids have a restrictive diet, but many of them have feeding tubes and endure several surgeries and procedures. These children show us parents incredible strength and endurance! It is our hope that other families dealing with this disease realize they are not alone, and that more people will become aware of this disease. Hopefully this blog will be a support to those living with eosinophilic disorders.
NOTE: House Resolution 296 passed in 2007 declaring the third week of May, National Eosinophil Awareness Week.
Wednesday, June 10, 2009
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1 comment:
Congratulations on finding out your having another little blessing:)How exciting that must be!Thank you for your sweet comment I was happy to hear from you!and I look forward to reading your blog!Have a great night!!
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