Jesus said, "This sickness is not unto death, but for the glory of God, that the Son of God may be glorified through it." John 11:4



You Are Not Alone!

We started this blog as a support to those families in Arkansas and around the country who are faced with raising a child with a life-altering eosinophilic disorder. It has been estimated that one out of 3,000 people have been diagnosed with an eosinophilic disorder. Children suffering from eosinophilic disorders have a myriad of problems. Some of which include: vomiting, diarrhea, feeding refusal, malnutrition, difficulty swallowing, and failure to thrive, just to name a few.

Could you imagine a life without food? For these children, that is a very real possibility. Many of them are on a very restrictive diet of special elemental formula. Those fortunate enough to still be eating foods are very limited as to what they can eat, and still have to drink an elemental formula to maintain a nutritionally complete diet. Not only do these kids have a restrictive diet, but many of them have feeding tubes and endure several surgeries and procedures. These children show us parents incredible strength and endurance! It is our hope that other families dealing with this disease realize they are not alone, and that more people will become aware of this disease. Hopefully this blog will be a support to those living with eosinophilic disorders.

NOTE: House Resolution 296 passed in 2007 declaring the third week of May, National Eosinophil Awareness Week.

Sunday, June 14, 2009

Home Sweet Home

We are all home together as a "whole" family again. I do not like it when we are apart, but it makes it that much sweeter when we are together. The trip home was good but long. Apparently if you are pregnant and you think you are drinking enough fluids, you should drink more. I am pretty sure that I got slightly dehydrated, making the muscles in my legs hurt when applying pressure or flexing my feet. For two days I hobbled around like Frankenstein...a sight to see I'm sure! Needless to say the trip was pretty uncomfortable. I think I have been drinking my weight in water since we have been home and that seems to be helping some. All-in-all everything went well and we all all happy to be home!
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1 comment:

crystal said...

Lisa,
Iam happy to hear you made it home safe!Sorry to hear about the ride home though:( I never did like traveling in a car when I was pregnant!I was usually frustrated lol!So I know what you are talking about lol!!
crystal

June 14, 2009 at 8:16 PM

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