Beloved friends, I can barely contain the excitement I feel as I tell you of how God is moving. What an Awesome and Mighty God we serve! My dear friend, Cassidy, posted a message to an eosinophilic message board about our family's needs, and here are the responses we received...are you ready for how Powerful God is? Let me share in His wonder....
"I have some extra Neocate Junior that I can send him. You can give them my email address and they can contact me."
"I have Neocate Jr. which I would think could be mixed to his needs. I may be able to give 30 or more cans. I am willing to continue to help and share my supplies ongoing if it is helpful for them."
"I will be happy to purchase a case or two of whatever formula works for him.Thanks."
"While on the formula, I ended up with several extra boxes of the Neocate, which is not expired. I would be willing to ship it, assuming that I would be reimbursed for postage. Let me know."
Are you smiling yet? I am. Thank you for joining me at the Throne; please continue to meet with us there. I am so thankful I can share in this experience with those I cherish so dearly. There is nothing more empowering than the Mighty Power of our Lord and Savior, Jesus Christ. Thank you, Jesus! Thank you, Jesus! Thank you, Jesus! We give You ALL the glory!
Visual Insight To Life With An EGID
You Are Not Alone!
We started this blog as a support to those families in Arkansas and around the country who are faced with raising a child with a life-altering eosinophilic disorder. It has been estimated that one out of 3,000 people have been diagnosed with an eosinophilic disorder. Children suffering from eosinophilic disorders have a myriad of problems. Some of which include: vomiting, diarrhea, feeding refusal, malnutrition, difficulty swallowing, and failure to thrive, just to name a few.
Could you imagine a life without food? For these children, that is a very real possibility. Many of them are on a very restrictive diet of special elemental formula. Those fortunate enough to still be eating foods are very limited as to what they can eat, and still have to drink an elemental formula to maintain a nutritionally complete diet. Not only do these kids have a restrictive diet, but many of them have feeding tubes and endure several surgeries and procedures. These children show us parents incredible strength and endurance! It is our hope that other families dealing with this disease realize they are not alone, and that more people will become aware of this disease. Hopefully this blog will be a support to those living with eosinophilic disorders.
NOTE: House Resolution 296 passed in 2007 declaring the third week of May, National Eosinophil Awareness Week.
Could you imagine a life without food? For these children, that is a very real possibility. Many of them are on a very restrictive diet of special elemental formula. Those fortunate enough to still be eating foods are very limited as to what they can eat, and still have to drink an elemental formula to maintain a nutritionally complete diet. Not only do these kids have a restrictive diet, but many of them have feeding tubes and endure several surgeries and procedures. These children show us parents incredible strength and endurance! It is our hope that other families dealing with this disease realize they are not alone, and that more people will become aware of this disease. Hopefully this blog will be a support to those living with eosinophilic disorders.
NOTE: House Resolution 296 passed in 2007 declaring the third week of May, National Eosinophil Awareness Week.
Thursday, March 5, 2009
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1 comment:
Hello,
I came across your blog and was very encouraged by your blog and post!I have a daughter who Has EE and has had it since birth but was diagnosed about a year ago!I will be following your blog in hopes to encourage you along the way!I have a blog as well and your welcome to stop by maybe it will be of some encouragement to you to know there is another mom going through the same thing!Have a great day and God bless!
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