Jesus said, "This sickness is not unto death, but for the glory of God, that the Son of God may be glorified through it." John 11:4



You Are Not Alone!

We started this blog as a support to those families in Arkansas and around the country who are faced with raising a child with a life-altering eosinophilic disorder. It has been estimated that one out of 3,000 people have been diagnosed with an eosinophilic disorder. Children suffering from eosinophilic disorders have a myriad of problems. Some of which include: vomiting, diarrhea, feeding refusal, malnutrition, difficulty swallowing, and failure to thrive, just to name a few.

Could you imagine a life without food? For these children, that is a very real possibility. Many of them are on a very restrictive diet of special elemental formula. Those fortunate enough to still be eating foods are very limited as to what they can eat, and still have to drink an elemental formula to maintain a nutritionally complete diet. Not only do these kids have a restrictive diet, but many of them have feeding tubes and endure several surgeries and procedures. These children show us parents incredible strength and endurance! It is our hope that other families dealing with this disease realize they are not alone, and that more people will become aware of this disease. Hopefully this blog will be a support to those living with eosinophilic disorders.

NOTE: House Resolution 296 passed in 2007 declaring the third week of May, National Eosinophil Awareness Week.
Showing posts with label MEMEC. Show all posts
Showing posts with label MEMEC. Show all posts

Friday, October 3, 2008

Second Meeting

Thank you Cassidy and Laura for another successful meeting. It was great to express our concerns, pain, sadness, and frustrations with other mothers who understand life with an EGID. Don't forget to find your recipes. We are pulling our resources and recipes together to hopefully help one another out. Who knows, one day we may have a cookbook!

Also, a special thanks to Cassidy for letting us borrow her cotton candy machine. I can't wait to Abigail's face when she takes that first bite!
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