Jesus said, "This sickness is not unto death, but for the glory of God, that the Son of God may be glorified through it." John 11:4



You Are Not Alone!

We started this blog as a support to those families in Arkansas and around the country who are faced with raising a child with a life-altering eosinophilic disorder. It has been estimated that one out of 3,000 people have been diagnosed with an eosinophilic disorder. Children suffering from eosinophilic disorders have a myriad of problems. Some of which include: vomiting, diarrhea, feeding refusal, malnutrition, difficulty swallowing, and failure to thrive, just to name a few.

Could you imagine a life without food? For these children, that is a very real possibility. Many of them are on a very restrictive diet of special elemental formula. Those fortunate enough to still be eating foods are very limited as to what they can eat, and still have to drink an elemental formula to maintain a nutritionally complete diet. Not only do these kids have a restrictive diet, but many of them have feeding tubes and endure several surgeries and procedures. These children show us parents incredible strength and endurance! It is our hope that other families dealing with this disease realize they are not alone, and that more people will become aware of this disease. Hopefully this blog will be a support to those living with eosinophilic disorders.

NOTE: House Resolution 296 passed in 2007 declaring the third week of May, National Eosinophil Awareness Week.

Tuesday, October 21, 2008

Cicninnati Follow-Up

After much anticipation, we have our next trip to Cincinnati planned out. We will be leaving December 14th and returning December 19. Abigail will be scoped on Monday, and the rest of the week will be dedicated to finding out more about the severity of Ross' case of EE. He will have his consultaion with the GI on Tuesday, allergy tested on Wednesday, and scoped on Thursday. We sent Ross' initial pathology reports and slides to Cincinnati, and the results were more shocking than we had expected. His highest eosinophil count was 169 eos/hpf. Needless to say, we are anxious to hear what Cincy has to say about his treatment options!
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1 comment:

FoodAllergyMom said...

Your blog looks beautiful! My thoughts and prayers are with you and your family in your continuing journey. You mentioned a cookbook in your previous post (I know you may have been joking), if you ladies ever do get a cookbook together I would be proud to sell it on my site!

October 21, 2008 at 7:25 PM

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