"Count it all joy when you fall into various trials, knowing that the testing of your faith produces patience." -James 1:2-3
I have known this verse since I was a child, but came across it again in my reading last night. This verse and this verse alone may be the single most important verse for my family and the trails we are facing together. "Count it all joy..." I can honestly say that I see the joy in this disease called Eosinophilic Esophagitis. Yes my daughter and my husband both have this disease, but I see that my God has a bigger plan. A plan bigger than the disease, bigger than not being able to eat, bigger than the strange and confused looks, and much bigger than the tears. I know that this is for HIS glory. I am honored and blessed to be the wife of an incredibly strong man that restricts his foods so that he can be healthier, and so that someday he can tell his baby girl that he made sacrifices that paid off so they can both be well. A man who is willing to face this disease knowing that God is standing there with him through it all. Ross and I are equally as blessed to know that our Heavenly Father entrusted us to provide for such a sweet and beautiful little girl. Although Abigail isn't able to eat the foods we eat, she has brought us joy beyond words. Her name has truly brought meaning to our lives; even more so than we could have ever imagined. Abigail means "My father's joy," and she is just that. Not only has EE brought us joy, but it has also brought us patience. Patience in waiting for doctor's appointments, money to provide the medical care needed, test results, and the unknown. Through this trial we have met amazing people with children that posses unexplainable strength. We have seen doctors with passion like nothing I have ever seen before. We have become a part of a church family that many do not find in their lifetime, and relied on family and friends for the support they have promised to show. So, if asked, yes I have found divine joy and patience during this trial, and thank God that He knew that with Him we could handle it. This trial is a process, but someday I know there will be healing, and we will give Him and Him alone all of the glory!
Visual Insight To Life With An EGID
You Are Not Alone!
We started this blog as a support to those families in Arkansas and around the country who are faced with raising a child with a life-altering eosinophilic disorder. It has been estimated that one out of 3,000 people have been diagnosed with an eosinophilic disorder. Children suffering from eosinophilic disorders have a myriad of problems. Some of which include: vomiting, diarrhea, feeding refusal, malnutrition, difficulty swallowing, and failure to thrive, just to name a few.
Could you imagine a life without food? For these children, that is a very real possibility. Many of them are on a very restrictive diet of special elemental formula. Those fortunate enough to still be eating foods are very limited as to what they can eat, and still have to drink an elemental formula to maintain a nutritionally complete diet. Not only do these kids have a restrictive diet, but many of them have feeding tubes and endure several surgeries and procedures. These children show us parents incredible strength and endurance! It is our hope that other families dealing with this disease realize they are not alone, and that more people will become aware of this disease. Hopefully this blog will be a support to those living with eosinophilic disorders.
NOTE: House Resolution 296 passed in 2007 declaring the third week of May, National Eosinophil Awareness Week.
Could you imagine a life without food? For these children, that is a very real possibility. Many of them are on a very restrictive diet of special elemental formula. Those fortunate enough to still be eating foods are very limited as to what they can eat, and still have to drink an elemental formula to maintain a nutritionally complete diet. Not only do these kids have a restrictive diet, but many of them have feeding tubes and endure several surgeries and procedures. These children show us parents incredible strength and endurance! It is our hope that other families dealing with this disease realize they are not alone, and that more people will become aware of this disease. Hopefully this blog will be a support to those living with eosinophilic disorders.
NOTE: House Resolution 296 passed in 2007 declaring the third week of May, National Eosinophil Awareness Week.
Thursday, October 23, 2008
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1 comment:
very good blog, some how i found you researching on stuff for our sons birth defect esophageal atresia, i wish you the best.
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