Jesus said, "This sickness is not unto death, but for the glory of God, that the Son of God may be glorified through it." John 11:4



You Are Not Alone!

We started this blog as a support to those families in Arkansas and around the country who are faced with raising a child with a life-altering eosinophilic disorder. It has been estimated that one out of 3,000 people have been diagnosed with an eosinophilic disorder. Children suffering from eosinophilic disorders have a myriad of problems. Some of which include: vomiting, diarrhea, feeding refusal, malnutrition, difficulty swallowing, and failure to thrive, just to name a few.

Could you imagine a life without food? For these children, that is a very real possibility. Many of them are on a very restrictive diet of special elemental formula. Those fortunate enough to still be eating foods are very limited as to what they can eat, and still have to drink an elemental formula to maintain a nutritionally complete diet. Not only do these kids have a restrictive diet, but many of them have feeding tubes and endure several surgeries and procedures. These children show us parents incredible strength and endurance! It is our hope that other families dealing with this disease realize they are not alone, and that more people will become aware of this disease. Hopefully this blog will be a support to those living with eosinophilic disorders.

NOTE: House Resolution 296 passed in 2007 declaring the third week of May, National Eosinophil Awareness Week.

Wednesday, December 17, 2008

Snow, GI Visit, and a Little Fun



Ross' appointment with the GI went well today. Dr. Kushner was very nice and more importantly, he was well educated in EE. He asked a lot of questions about Ross' previous history and prepared us for the scope on Thursday. Tomorrow's appointment with the allergist will be more eventful I'm sure. That appointment will be at 11:30 am.

On another note, it snowed here a little today. Unlike Arkansas, they know how to treat and scrap the roads here. However, if you ask people that live here, they say they don't know what they are doing...obviously they haven't been to Arkansas when it snows! :)

We have been able to have some fun while we were here this time. We went to dinner with our friends that we met the first trip we came to Cincinnati. Poor Conner wanted to get down and play like any normal 18 month old, so he ended up with Grandpa for a while. Next time Conner, we will have to go somewhere that will allow you and Abbz to run around and play! Thanks guys for working us into your busy schedule and for a wonderful dinner.
Posted by at
Labels: ,

No comments:

Post a Comment

Subscribe to: Post Comments (Atom)