It is estimated that one out of aprroximately 10,000 people are diagnosed with an Eosinophilic Disorder.
Friday, January 16, 2009
Ross' Results
We wanted to let you all know that we received Ross' results in the mail today, and they were not exactly what we were expecting. The results were actaully much worse than we had originlly anticipated. There were increased eosinophils present in his small intestines, large intestines, and blood vessels; as well as, his esophagus. The numbers were outstanding in his esophagus at 245 eos/hpf...they should be zero. His doctors have a meeting scheduled for February 5 to discuss his treatment options. At this point, his options are very limited. The three options that we know about at this time are: 1. Formula only for three months (like Abigail) 2. Large doses of inhaled steroids swallowed (indefinately) 3. Biological trail drugs. Please be in prayer that God direct the doctors and us down the right treatment path and that we are prepared to do what needs to be done. Thank you all for the prayer and support you have shown our family. Although this news was difficult to take in we know the Father has mighty things in store for the future!
I just wanted to thank you for your helpful blog. My 22 month old son has EE and I have found the most helpful information by talking with other mothers and reading their blogs. You probably have the most organized blog I have come across so far!
ReplyDeleteSorry for your struggles, you have a cute family and darling little girl.
It is comforting to know others are going through the same frustrations!
We are thinking about you. . .
ReplyDelete