I just spoke with Abigail's GI at ACH. The biopsy showed that Abigail has increased eosinophils at 12 eos/hpf in her lower esophagus. This number is no where near the 90eos/hpf like it was in December, but there should never be any eos present in the esophagus. There was also slight furrowing again. Her doctor doesn't want to change anything right now since we will be going to Cincinnati Children's in August. My question is; if we sit, wait, and do nothing will her eosinophils continue to rise? I guess that is something we will have to wait and see about. Abigail is still only drinking about a maximum of 21oz. per day, but she is maintaining her weight so her doctor is happy with it. For now anyway. Thankfully, her doctor is going to email, Dr. Putnum (Cincinnati GI) to give him the results of this last biopsy. Now, we continue to wait. Let me just say how fortunate we have been to have such a great Gastroenterologist. For any of you that are searching Arkansas or the surrounding area for a good GI that has experience with Eosinophilic Disorders, Dr. O'Connor is excellent.
Addendum: This scope was done less than 12 weeks after given steroids; therefore, these numbers are inconclusive. Most likely the eos/hpf would have been greater.
Visual Insight To Life With An EGID
You Are Not Alone!
We started this blog as a support to those families in Arkansas and around the country who are faced with raising a child with a life-altering eosinophilic disorder. It has been estimated that one out of 3,000 people have been diagnosed with an eosinophilic disorder. Children suffering from eosinophilic disorders have a myriad of problems. Some of which include: vomiting, diarrhea, feeding refusal, malnutrition, difficulty swallowing, and failure to thrive, just to name a few.
Could you imagine a life without food? For these children, that is a very real possibility. Many of them are on a very restrictive diet of special elemental formula. Those fortunate enough to still be eating foods are very limited as to what they can eat, and still have to drink an elemental formula to maintain a nutritionally complete diet. Not only do these kids have a restrictive diet, but many of them have feeding tubes and endure several surgeries and procedures. These children show us parents incredible strength and endurance! It is our hope that other families dealing with this disease realize they are not alone, and that more people will become aware of this disease. Hopefully this blog will be a support to those living with eosinophilic disorders.
NOTE: House Resolution 296 passed in 2007 declaring the third week of May, National Eosinophil Awareness Week.
Could you imagine a life without food? For these children, that is a very real possibility. Many of them are on a very restrictive diet of special elemental formula. Those fortunate enough to still be eating foods are very limited as to what they can eat, and still have to drink an elemental formula to maintain a nutritionally complete diet. Not only do these kids have a restrictive diet, but many of them have feeding tubes and endure several surgeries and procedures. These children show us parents incredible strength and endurance! It is our hope that other families dealing with this disease realize they are not alone, and that more people will become aware of this disease. Hopefully this blog will be a support to those living with eosinophilic disorders.
NOTE: House Resolution 296 passed in 2007 declaring the third week of May, National Eosinophil Awareness Week.
Sunday, June 22, 2008
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment