Jesus said, "This sickness is not unto death, but for the glory of God, that the Son of God may be glorified through it." John 11:4



You Are Not Alone!

We started this blog as a support to those families in Arkansas and around the country who are faced with raising a child with a life-altering eosinophilic disorder. It has been estimated that one out of 3,000 people have been diagnosed with an eosinophilic disorder. Children suffering from eosinophilic disorders have a myriad of problems. Some of which include: vomiting, diarrhea, feeding refusal, malnutrition, difficulty swallowing, and failure to thrive, just to name a few.

Could you imagine a life without food? For these children, that is a very real possibility. Many of them are on a very restrictive diet of special elemental formula. Those fortunate enough to still be eating foods are very limited as to what they can eat, and still have to drink an elemental formula to maintain a nutritionally complete diet. Not only do these kids have a restrictive diet, but many of them have feeding tubes and endure several surgeries and procedures. These children show us parents incredible strength and endurance! It is our hope that other families dealing with this disease realize they are not alone, and that more people will become aware of this disease. Hopefully this blog will be a support to those living with eosinophilic disorders.

NOTE: House Resolution 296 passed in 2007 declaring the third week of May, National Eosinophil Awareness Week.

Thursday, March 5, 2009

Many Thanks!

Beloved friends, I can barely contain the excitement I feel as I tell you of how God is moving. What an Awesome and Mighty God we serve! My dear friend, Cassidy, posted a message to an eosinophilic message board about our family's needs, and here are the responses we received...are you ready for how Powerful God is? Let me share in His wonder....

"I have some extra Neocate Junior that I can send him. You can give them my email address and they can contact me."

"I have Neocate Jr. which I would think could be mixed to his needs. I may be able to give 30 or more cans. I am willing to continue to help and share my supplies ongoing if it is helpful for them."

"I will be happy to purchase a case or two of whatever formula works for him.Thanks."

"While on the formula, I ended up with several extra boxes of the Neocate, which is not expired. I would be willing to ship it, assuming that I would be reimbursed for postage. Let me know."

Are you smiling yet? I am. Thank you for joining me at the Throne; please continue to meet with us there. I am so thankful I can share in this experience with those I cherish so dearly. There is nothing more empowering than the Mighty Power of our Lord and Savior, Jesus Christ. Thank you, Jesus! Thank you, Jesus! Thank you, Jesus! We give You ALL the glory!
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Sunday, March 1, 2009

Ross' Journey

Today marks day one of Ross' three month formula ONLY treatment. He is drinking the hypoallergenic formula, Neocate Jr. Tropical. We also have the unflavored Noecate Jr. coming that we plan to flavor with the SHS flavoring packets. I have been told that it can also be flavored with cherry or grape Kool-Aid, but I will have to call Cincinnati to find out if it is a "safe" food. I will let everyone know what I find out when I hear from them. I hope we can be an encouragement to others that are about to embark on the same journey; children and adults alike. Someday, Ross will be able to explain to his daughter how he drank special formula just like her. What an amazing bond they will share!

2 Corinthians 12:9
And He said to me, “My grace is sufficient for you, for My strength is made perfect in weakness.” Therefore most gladly I will rather boast in my infirmities, that the power of Christ may rest upon me.
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